Episode 1: Epilepsy - Basic Knowledge via Zoom

2 months ago

When

Saturday, January 24th 2026 at 11:00 CET

We’re testing something new — live and together with you.

This Saturday, Explain Epilepsy launches its first session with AI-based live translation, opening the discussion to participants from all over the world.

The session will be available in German (native), English, Spanish, and French.

You’ll hear Prof. Angela Kaindl, Prof. Rainer Surges, and Dr. Arthur Jordan in the language of your choice.

This is highly experimental — and we’re testing it openly.

Does it work? Does it help? Tell us.

We invite people living with epilepsy, families, and caregivers worldwide to join, try it, and share honest feedback.

Accessible epilepsy education and SUDEP prevention require new paths — taken carefully and together.

Registration is free of charge.

CME-certified in Germany.

To sign up, please email

stop.sudep@oskarkillinger.org

#stopsudep #explainepilepsy #epilepsy #sudep #talkaboutsudep

FAQ Did you know?

Epilepsy Neurology Health Education Awareness

Where

Lisle, IL, USA

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Event Stats

Attendees

Supporters

Donors

Organizer

Row Global Health

ROW (Rest of World) works to improve the quality of training, diagnosis and treatment available to people living with epilepsy and associated psychiatric disorders in under-resourced areas of the world. We partner with other organizations to maximize impact in under-served areas, both domestically and internationally.

FAQ

What is the main purpose of this session and how does it support SUDEP prevention and better epilepsy education?

The session is an international, accessible education pilot that tests AI-based live translation so people worldwide can learn from experts in their own language. Its goals are to raise awareness about epilepsy and SUDEP (sudden unexpected death in epilepsy), share evidence-based prevention concepts, and gather real-world feedback on whether new translation and delivery methods make education more usable and safer for people living with epilepsy, families, and caregivers.

How can I prepare so my time at the event is most effective and useful to others?

Review a short list of reputable background resources if you can, prepare 1–3 concise questions or scenarios you want the speakers to address, have a brief medical summary ready if you plan to ask about your situation (but avoid sharing sensitive identifiers in public chat), test your Zoom audio/video and internet connection, choose your preferred language when registering by emailing stop.sudep@oskarkillinger.org, and use headphones and a quiet room so translation quality and audio remain clear for everyone.

This is an experimental translation—how should I give feedback to make it most helpful to the organizers?

Be specific: note the language, speaker name (if you can), and timestamp or approximate minute where the issue occurred; describe the problem (missing content, wrong meaning, awkward phrasing) and, if possible, suggest a short alternative rendering. Send feedback by the channel the organizers provide during or after the session (chat, post-event survey, or email stop.sudep@oskarkillinger.org). Also report your device/browser and whether you used captions so they can reproduce issues.

What precautions should attendees take when sharing personal experiences during the live session?

Protect your privacy: avoid sharing full names, exact addresses, or other identifying details. Use general descriptions (e.g., age group, seizure type) if you want advice. If you need individual medical guidance, request a private follow-up with a clinician rather than seeking diagnosis in the public chat. If the session is recorded, assume that content could be reviewed—ask the moderators about recording policies before sharing sensitive information.

How can supporters and allies help after the session to advance accessible epilepsy education?

Share the event and materials with relevant communities using the provided hashtags (#stopsudep #explainepilepsy), recruit people who speak underrepresented languages to test translations, amplify organizers' requests for specific feedback, host a local viewing or discussion group, and encourage health professionals to participate in future sessions. If you want to volunteer technical or accessibility support, contact the organizer at stop.sudep@oskarkillinger.org.

Did you know?

About 50 million people worldwide live with epilepsy, making it one of the most common neurological conditions globally — your participation helps reach and support a large, diverse community.

https://www.who.int/news-room/fact-sheets/detail/epilepsy

With timely diagnosis and appropriate treatment, up to 70% of people with epilepsy could become seizure‑free — education and outreach events help more people get the care they need.

https://www.who.int/news-room/fact-sheets/detail/epilepsy

Sudden Unexpected Death in Epilepsy (SUDEP) is the most common epilepsy-related cause of death; the overall annual risk is roughly 1 in 1,000 people with epilepsy, and risk is higher with uncontrolled generalized tonic‑clonic seizures — learning about prevention and monitoring can save lives.

https://www.epilepsy.com/learn/impact/other-related-conditions/sudep-sudden-unexpected-death-epilepsy

Public education and community awareness measurably reduce stigma and discrimination against people with epilepsy, improving social inclusion and access to care — attending and sharing educational events helps change attitudes.

https://www.who.int/news-room/fact-sheets/detail/epilepsy

Telemedicine and remote education have expanded access to epilepsy specialists and follow-up care, especially for people in underserved areas — joining online sessions supports inclusive, accessible care models.

https://www.epilepsy.com/learn/treatment/remote-care-telehealth

Training families, caregivers, teachers and first responders in seizure first aid reduces injuries and unnecessary emergency visits — community training and knowledge-sharing at events directly improve safety for people with epilepsy.

https://www.epilepsy.com/learn/seizure-first-aid-and-safety